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12-Jan-10
Sandra
Auckland
Happy New Year to everyone. This is my first time on the site and I just wanted to ask if anyone knows of a fund you can apply to, to get financial help with the cost of physio for lyphedema...?? Any info would be great thanks.
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01-Apr-09
Sue
Kerikeri
Claire, you dont mention what type of cancer your parents died of ---or what age you are, or if you have a suspicious breast lump that needs further examination. You may be worrying quite needlessly. Please ask some more questions of your health advisors and take a friend with you during the tests. Remember not all lumps mean cancer.
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26-Mar-09
Claire
Whakatane
Hi everyone this is my first time on this and need some support. Im having my first lot of test to see if I have breast cancer and im not looking forward to it. The reason for that both my parents have died in the last five years with cancer so my odds are not that good. But Im holding on. Is there anyone out there thats going through this first stage??
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13-Mar-09
Kath
Auckland
(continued)..... and a real belief that I am going to live for many years. The headaches have gone and I have heaps of energy. If anyone is interested in more of what I am doing to feel so good let me know.
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13-Mar-09
Kath
Auckland
Hi I was diagnosed with breast cancer 18months ago and secondary bone cancer with pain I cannot express in words and now brain tumours. I have to say that I now feel the best and I'm the happiest I have been all my life. No more stress of juggling a business with having toddlers. I have a wonderful husband, 2 beautiful/ ratbag young boys. I am pain free from the pain killers, had chemo and a few rounds of radiation. My current healing program consists of diet, lots of Vitamin C, other supplmentsand a real b
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12-Sep-08
kim
te kuiti
hi everyone it is my first time on your site but feel compelled to write and encourage young women to have breast checks i can not push this issue enough the age of breast checks is 45 sadly i had my younger sister of 29 die last year from breast cancer a fight she gave her all to try and conquer she gave it her all for nearly 3 years, we are all warned of breast checks as we get older the truth sadly is this disease has no age barriers, examine yourselves religously and please do not take chances with your health, any changes should be taken seriously, and for those of you who are stricken with this disease be strong and positive it goes a long way in your recovery, god bless
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05-Jul-08
Sue
Northland
Brenda, please go ahead and have your mammogram as scheduled for August. It is not a certainty that your family has an increased risk from hereditary. Regular checks are important for all women. That includes local GP checkout.
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23-Apr-08
Brenda
Tauranga
Oh silly me! I meant to say I was going to wait until August to have a mammogram.
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23-Apr-08
Brenda
Tauranga
I have just found out that my sister has breast cancer. She goes into hospital next week.I'm so shocked. My aunt had cancer.Would that means I have a greater risk.I was going to wait until I turned 45 in August so it would be free.We haven't been close in the past.
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10-Jan-08
jacqui
auckland
Hi, i am on a journey with a friend with breast cancer. She is very positive. She has just had her 3rd chemo treatment with 3 more to go and then radiotherapy. She has just found a lump on the other breast. I would like to have some answers re what this might mean and some chats with others who have been support people for their friends.
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06-Aug-07
Amy McLean
Hamilton
Hello everyone, I am holding a fundraiser ball in Hamilton on the 8th September 2007, and all proceeds are being donated to the NZ Breast Cancer Foundation. We are selling tickets at $65 single and $120 double. The theme for the night is dancing with the stars and it is being held at the Kingsgate Hotel in Hamilton. If you would like more information, please contact me on either 027 470 6785 or at amy.tyrone@xtra.co.nz.
I look forward to hearing from some of you soon and I hope you will come join us for a lovely evening, supporting a great cause.
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25-Jul-07
anita
auckland
hi Dianne, you will be fine things will take a while I would like it you could ring me 09 267 5551 so I can give you some support what part of Auckland are you.
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22-Jul-07
Dianne
Auckland
Hi All - Just web surfing - all about TRAMs etc as later this week I'm about to have a mastectomy (right breast) and immediate TRAM flap reconstruction. I'm as nervous as hell, and wondering why I'm doing this to myself. Not even sure what I'm nervous about ... the surgery ? after the surgery? The time it will take to do things like hanging up the washing - oh the things one begins to appreciate once something like this happens.
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09-Jul-07
anita
auckland
hi to all ,g reat site.I've just had a double mastectomy & reconstruction done 2 weeks ago doing ok but am experiencing really bad pain in my shoulder has anyone else had that experience,love to hear from you .To Cindy of auckland call me on 267 5551 to chat would love to talk to you.To all you men on this site great work keep it up well done.Look forward to hearing or reading this site soon.bye for sll you boossy friends
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10-Jun-07
Sue
Kerikeri
Grace, thanks for sharing this , can I suggest you contact a physiotherapist who is trained in Lymphoedema massage as soon as possible. Helen Clarke is such a physio and who works in Hamilton. You need to get the lymph fluid moving. This can happen at anytime after surgery where the glands have been removed, hence care of affected arm is life long. Sue.
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23-May-07
Grace
Tokoroa
Hi hello everyone, this is just so marvellous finding this website..a little background had two breast opps over 12yrs ago, 1st one missed the tumour , three years later it was picked up AGAIN by a mobile screening,,whoaaaaaaaaaa!hook biopsy horrors..but lucky..so off i went and out it came...that was over 12yrs ago as I said, didn't want radiation, lotsa lympth nodes out, and back to work, no probs over all that time, but..ooer a couple days ago woke up and looked at my arm and thought hello thats swollen, hmmmm so here I am wondering if anyone has any advice or similair experience,looked it up and it says edema? isn't it odd after all these years? any suggestions would be most welcome....blessings to all:>)
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30-Apr-07
Dani
Hamilton
Hi guys, I feel you are all so brave. I don’t have breast cancer myself, but my mum does. However she is having her treatment in China where I believe the medical treatment is not as sophisticated as in New Zealand. She is having a complicated situation now, there is a cancerous lymph node near her heart pressing her esophagus, she is so weak at the moment cause she can’t eat. And the doctor suggest only radiotherapy can work for a lymph node which can’t be taken out, however, the radiotherapy she received two years ago has damage so badly her lung and tissue near the esophagus, that doctor warned it’s risky to take the radiotherapy.
Since I am working in New Zealand, I wish I could get better medical advices from medical practices here for her providing all of the data from her treatment history and reports.
I really appreciate if any of you known any better idea or any good breast cancer doctor here I can contact, I am desperate and please help.
Thank you so much
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16-Mar-07
Myra
Te Kuiti
I've just found this website and have been reading the stories of others, who like myself are living with the effects of breast cancer. Suddenly I don't feel so alone... seems that there are heaps of us! I had a large high-grade ductal carcinoma and lymph-nodes removed at the end of January and on Monday I have an appointment in Hamilton to find out when I start Chemotherapy and Radiation therapy. It's a scary time for me and my family. My kids' Dad died of Breast Cancer in 2003, so this is especially hard for them, though they are very supportive. I know so little about the whole subject of bc and am searching to find more information, so I know what I'm likely to be dealing with, so thank you for writing in your comments for others to read.
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31-Jan-07
donna
gisborne
Hello.I have just logged onto to this website. I read Sues story about being off to Aus. I and my husband are off to Aus on Monday as Palmerston north are so backlogged they have to send me to melbourne. It is hard to know what to expect and being away from our family for so long is a worry. However I'm grateful to have the treatment more quickly.I'll let you know how it goes. regards Donna
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19-Aug-06
Kevin Owen
Rotorua
What is the Holistic Approach?
Spiritual Healing
Often the spirit can become crushed or discouraged by life or illness. Extending our prayer life, growing in faith, and the laying on of hands may provide the momentum to assist an individual's ability to take up their own healing journey. We may need to find a spiritual counsellor to assist us.
The above is a quote from the Breast Cancer Web Site
Spiritual and Mental Stress is a big part of any illness
and should be handled especially in the field of Breast Cancer.
I work in that field and could help with any Spiritual,Mental and Physical Stress, associated with it.
There are many different, gentle ways to handle stress which allows the person to cope better with healing and with the after effects
Let me know if you have any questions
Kevin Owen
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04-Jun-06
Sue M
Kerikeri
Robyn, perhaps you could visit your local physiotherapist who should be able to inform you were the 'pulling feeling " is originating from.
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04-Jun-06
Sue M
Kerikeri
Mary , that is very cool that your committee has chosen to remember us in NZ for the Relay for Life in Medford. Coming together will at least lessen the impact BC has on the lives of so many women world wide. I attended a relay in Halifax Nova Scotia last June and it was great to see young people out supporting, being educated, and doing their bit. We do hope you have a sucessful walk and visit your brother here in NZ one day. All the best.
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30-May-06
Mary M
Medford, NJ, USA
Dear New Zealand Breast Health Friends,
My name is Mary Manion. I am a 5 year breast cancer survivor in Medford, NJ, USA. I am on the committee for our local Relay For Life fundraiser for the American Cancer Society. I have a relay team called "Surfin' For A Cure." My team highlights online support for cancer such as this forum and online cancer education. Online support has meant so much to me in my own journey.
Our Relay For Life event is held this year on June 24-25. Our theme is "Spanning The Globe- Walking Together To Find A Cure." We are asking teams to choose a country to represent. My team has chosen New Zealand!
Why New Zealand? My brother has recently moved to NZ. And NZ is such a beautiful place to go real surfing! Also- I am so impressed with The Cancer Society of New Zealand and the Relay For Life webpages I have been reading. So I am honored to represent your beautiful land here in the United States. Unfortunately we all share the common fight against cancer.
I maintain the event webpage which I seem to be unable to post here- but if you go a Google search for "relay for life medford" you should find us in the top ten- it's hosted on Tripod. I hope you will visit!
I am making a large bulletin board for our event and would like to fill it with letters or emails from New Zealand cancer patients and friends. Feel free to email me:
medford-relay@comcast.net or you may write to me at
Mary Manion
139 Cowpath Road
Medford, NJ 08055
Thanks for your support! I wish you all good health and wellbeing. Continue fighting cancer. Never give up. One day I will be lucky enough to visit New Zealand in person and perhaps I will be meeting some of you!
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27-May-06
Robyn
Whakatane
Hi to everyone, I have had breast cancer twice in ten years and have now developed very painful pulling in one of my arms. Does anyone know what it might be, i am guessing Lymphodemea may be present but what is the pulling and what can i do for it. I will see my specialist but it can take a while to get an appointment any advise would be appreciated.
Kind Regards
Robyn
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17-Jan-06
Moana
Taranaki
Hi All,
I am 26years old and tomorrow i go for my ultrasound which i am guessing is the first of a few tests required, i found my lump about 2 weeks ago and have been waiting for what seems like forever.
I am wondering if anyone can tell me the normal process for this? I know nothing other than the fact that i have a lump no body has explained much to me at all although people have been very forthcoming with their opinions and personal horror stories.
Thanks
Moana
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23-Dec-05
Sue
Northland
Thanks to Pharmac and the suppliers of Zoladex for not taking this drug away from Breast and Prostate cancer patients who require it.
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19-Oct-05
Gayle
Auckland
Hi folks, I was diagnosed with b.c. last month and have since had a lumpectomy. I now face radiation and tamoxifen, neither of which excites me. I have been told that there is a PET scan I can take which will show if the cancer has gone "walk about" and also a cold/heat photo which freezes down the breast and where any cancer cells remaining show up as heat spots. If you have heard of either of these could you please respond and let me know where I can obtain help and/or information.
Many thanks.
Hi Gayle, the usual tests to locate the presence of walk about bc cells as you refer to them are : a bone scan for the bones, liver ultrascan for the liver and a chest xray. Sorry have not heard of a test that colds/heats the breast to find any left over cancer cells in the breast. The reason for radiotherapy is to wipe out any such cells once surgery has taken place.Please get back in touch with your surgeon to find out what and why a PET scan could be done. all the best Sue
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30-Sep-05
Christine
Hastings
Hi There,
I have just read Dr john Lee's article on your Book List.
That is just what I was talking about.... he was a wonderful doctor and his work is continued at the Hopkins Health Watch.
Please ladies read it..
Christine
Co-ordinator : for more info on this subject go to the Breast cancer drop down menu as above, go NZ Papers, Go Topical Papers go Natural Hormone therapy. 1 and 2, or put hormone therapy in search engine on site. These two papers may be printed out.
Please remember to tell your friends not to nuke baby's milk bottle in the microwave, estrogen mimiking chemicals are our next major worry after HRT. Thankyou Christine for your messages.
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30-Sep-05
Christine Jackson
Hastings
Hi There
This is a wonderful site.
I do not have cancer, but have been researching Menopause and hormone replacement. I am now using Natural progesterone cream, which is available from yor doctor on prescription.
HRT is synthetic and is not Natural Progesterone.Information suggests HRT and the Pill is the cause of a lot of our cancers. We have been using it for 40 years, and now they tell us it causes cancer.
Natural Progesterone protects estrogen based cancers , including prostate, is completely natural, and is worth investigation.
There is much info on the web under "Natural Progesterone" , 'Dr John Lee' and 'Hopkins Health Watch'
Kimberley Paterson has written a wondrful book on the subject for NZ Women. Her website is WWW.lodestarmedia.co.nz
There is also a brilliant site by Catherine Rollins in Australia
with lots of information on hormones and cancer.you can find it at WWW.natural-progesterone-advisory-network.com
I lost my Mum and youngest sister to cancer and am very aware that we all have to to do the best we can to protect ourselves.
I hope this information will help someone out there. It is important for all women to learn all we can and not just when we have cancer. Our daughters are particularly vulnerable and need to be aware of the dangers of synthetic hormones and pesticides.
Sincerely
Christine
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18-Sep-05
Helen
Marlborough
Hi,an interesting site nice to read others stories,thought I'd add mine,was daiognosed with breast cancer in June ,Nearly finished chemo, which has been tough,but am getting there.Have 5 week's radiotherapy to follow.
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15-Aug-05
moderator
This is a site for people interested in breast cancer and your message about porn is not welcome here.
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29-Jul-05
Julie Keane
Wellington NZ
what you do and contribute to those with cancer and those supporting friends/family with cancer is teriffic.
Your advice, friendly and supportive nature gives reprieve from confusion, and concern and offers hope that we can all make a difference.
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17-Jul-05
HomeL
USA
Thank you for this nice site!
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16-Jul-05
Sue
Kerikeri
Tracey, good on you. You are well on your way to becoming a thrivor. At diagnosis one initially is virtually the victim, then as we get through the treatment, and all the scary emotional stuff you move to be a survivor. With that new knowledge you are then available to pass it on and to help others. That is the thrivor stage. This can only occur as we transcend the journey with love and wisdom. This analysis came from a Cheeroke Indian called Linda Burhansstipnov who spoke at the 4th World Conference on BC Halifax.
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14-Jul-05
CheapH
USA
Awesome site! congrats!
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13-Jul-05
Tracey
Marlborough
Hi Amazing women,
I've been reading through some of the letter's and I am so encouraged and relieved (actually) at what I've read. Encouraged because I wrote in here a few months ago and have had encouraging responses, And relieved because when I read about angry feelings, fearful feelings, confusion etc. I see that I am normal (under the circumstances). I am 38, a mother of 3 active young boys and a 22yr old daughter and also I am a grandmother. I was diagnosed with bc 9mths ago, and have had lumpectamy, Chemo and Radiation and was suposed to be put on tamoxifin a month ago, but was forgotten about...but I'm on to them! I thought I had come through the fearful stage and that that part was all behind me!!! I even got through with out saying "why me"? And "it's not fair"! I just did it, cos I had no other choice. But now it's all hit the fan...big time. I have never been more confused in my life, Sometimes I am angry and I feel like it's not fair and that it sucks badly!!! I am continuously fighting the negative thoughts and trying to be in 'survivor' mode. Which is where I want to be...not 'cancer victum' mode. It's not easy, as I'm sure everyone understands. One thing I have found to be helpful, is taking an active role in my recovery plan with the doctors. I am also interested in going to seminars, educating myself about breast cancer and eventually being able to help others who are going through breast cancer. It's scarry sometimes thinking about bc and what the future may hold and how much future do I have...but I have decided to believe that I am going to be around for a long long time, for the world to enjoy me :-)
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06-Jul-05
Sue Dalison Ryan
Kerikeri
Dear Bev, I was with Sue[ed] yesterday and she told me that your story would make my blood boil. How right she is! However, what I would take out of it, is that you are a battler, and brave, and undoubtly will live your life to the full...especially now that you have shared your story! That in itself takes courage.
The message that I would hope all other bc sufferers will take from you is SPEAK UP. Do NOT take no for an answer, and do not wait when YOU the patient KNOW that there is something wrong.
I have writen a booklet about Lymphoedema of the Breast[ a condition I was left with after having bc, and a partial mastectomy to remove it,plus radiation last year]which is due to be published soon. I wrote this because there is no information about this condition available to the general public nor the medical proffesion[ well not in a form that the later will read!]. I have had a number of case studies from women with the same condition, all of them fighters, battlers and prepared to speak up. So thank you for doing the same.I would love to know how you are today? God Bless.
Thank you, Sue for this forum. It is such a good idea!
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27-Jun-05
Pete
Manawatu
Hi, this is actually a request for advise. I have a friend going through breast cancer treatment at present. She is a strongly independant woman who is accustomed to doing things on her own. She goes in to hospital on Wednesday to have the tumor removed, but may end up having the entire breast removed.
How can I be there for her ? I'm not quite sure how to react or what the best course of action is.
Perhaps there is someone out there who has been through this that can give me some helpful advise.
I can be emailed on roverv8@xtra.co.nz
Thanks
Pete
GOOD ON YOU PETE --JUST BE THERE AND ASK HER WHAT YOU CAN DO. HOPE ALL GOES WELL.
A new book out is Breast Cancer Husband ---how to help by Marc Silver pub Rodale Books ISBN 1579548334 or visit www.everycloud.com
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19-Jun-05
Bev
Weymouth, Auckland
Hi I am a breast cancer patient. I had a malignant melanoma
in 1995. Then in 1999 I had Metaplasia of the tongue.
In mid 2003 I started to feel tired and was suffering from hot flushs. I had been through the change of life in my mid thirtys. Blood tests were done by my GP but she now believed me when I said I had been through the change. Still she decided
HRT would be best. I only took this for two months witgh no change. July 2003 I decided to see another woman in the practice as my left breast was becoming hard and right breast had a new lump near arm pit. She told me she would refer me to the local breast clinic for an ultrasound. September I still hadn't heard from the clinic so nurse rang them. I was told I would have to wait till November.
In November I went but only mammogram was done and I was told no ultrasound as they hadn't received a referal for one.
Result of mammogram said NO EVIDENCE OF BREAST CANCER. I found this hard to believe as I had 2 tumours on left side and five on the right side from previuos mammograms. They always said no change in tumours and cysts. I STILL HAVENT HAD CONFIRMATION WITH HOSPITAL OVER THESE MAMMOGRAMS BEING MINE.
I have been trying to get them to check with my previous ones.
In March while in Fiji on holiday I found my left breast Red, swollen, hot and nipple was inverted.
When we arrived home I went to another GP that I had changed to and he refered me to the local Breast Clinic.
In April 2004 I was told by a specialist after FNA, Mammogram and ultrsound that I would have to have my left breast removed.
I asked for right one to be taken off as I had a DD cup size and it would be a precaution against the cancer spreading.
At this tme my specialist did no skin tests and I did not know I had Inflammatory breast cancer as well. I had to wait five weeks for surgery with no help given. I should have had chemo first followed by radiation as cutting the skin spreads inflammatory cancer. I had 2 tumours 50mm and 35mm, 19 out of 19 positive nodes. ER/PR negative HER-2 negative.
After going through the Health and Disability Commissioner the hospital have said they knew about the inflammatory cancer but I just fell through the cracks and they were short staffed.
My case is now with ACC. The secondary cancer is now in the spine and ribs.Xmas time I was given about six months to live.
I WOULD LIKE ALL WOMAN TO SPEAK UP. WE KNOW OUR BODIES. ALSO YOU DON'T HAVE TO HAVE A LUMP WITH NO PAIN TO HAVE BREAST CANCER.iNFLAMMATORY CANCER IS LIKE HOT NEDDLES JABBING THE BREAST.
I have had Chemo, two lots of radiation and I am now waiting for more radiation for pain. My 60th birthday is this month.
My husband is also going through treatment as he has prostate cancer.
BEV YOUR STORY BREAKS MY HEART AND MAKES ME ANGRE PLUS PLUS.
I PROMISE YOU THERE WILL BE A CONFERENCE FOR NZ WOMEN TO BE HEARD LOUD AND CLEAR IN THE NEW YEAR. A GROUP OF US SO CALLED CONSUMERS ARE WORKING ON GETTING OUT GUIDELINES FOR TREATMENT OF WOMEN. YOUR PROVIDERS SIMPLY DID NOT PROVIDE.
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30-May-05
Linda
Kapiti
Hi Jo,
I feel for you and other women with breast cancer too. We are all in this together and need to support each other.
Cancer is such an insidious disease and is a hell of a thing to destroy. The treatment and medication can be overwhelming at times.
No matter how much support you have, in the end it is happening to you - your body, your mind, your soul - it knocks you about from all angles and at times it is very hard to regain a positive attitude. I get my positivity from the beauty of Nature and the actions of decent caring compassionate people in this world. Every day we are fed too much negativity but there is so much good around us. Grab hold of it!
You have a right to feel so angry and cheated but once you get through that phase, make the most of each new day and see it as a bonus.
I had a full mastectomy last week and there have been tears and I will have to come to terms with disfigurement in the next few months. Unfortunately because I am having two more doses of chemo in the next couple of months, I am unable to have reconstruction at present and may decide with time that it is not for me.
I keep telling myself:
"I can't always choose what happens to me but I can choose the way I react to the situation I find myself in".
My prayers are with you.
Sue Thanks for replying to my previous message. I will try and obtain the book you suggested. Thanks also for making this website available to women like me.
(You women knock my socks off-- talk about attitude, you are definitley thrivors in my book. I am off to World conference in Halifax to present the paper Preventing BC which is loaded off the home page. Thanks for your comments Sue ED)
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29-May-05
Jo
Christchurch
Hi - MY STORY
6 years ago at the age of 35 I was diagnosed with breast cancer. I had a full mastectomy, lymph nodes removed (2 out of 11 were cancerous). I went through radiation and chemotherapy with no side effects. I had a 25% chance of dying within 5 years - during this time I had 4 operations due to infections with my reconstruction.
At the beginning of the year I was experiencing lower back pain - never dreaming the cancer had returned. 6 years to the week had passed and on a routine check up with my oncologist I was to have blood tests, bone scan and CT scan. I now have secondary breast cancer (bones) and am terminal. I have approximately 3 odd years to live.
I have just finished radiation treatment, am on a cocktail of drugs for the pain.
Media coverage of Kylie Minogue of late, Olivia Newton John, Belinda Emmett, Anastascia, Melissa Etheridge makes my blood boil. The words "battles with cancer, cancer survivor, cancer free" are just words. Just because a cancer was removed does not mean that the surgery was successful. There is still a period of 3 to 5 years before 'being safe' and even then that's not a sure bet given that it returned in me 6 years later.
It turns your world upside down, so many emotions to deal with as well as the chronic pain felt daily.
I feel for all those who are going through what I've been through and am going through now. And I hope these women are receiving support and compassion from those around them.
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03-May-05
Linda
Kapiti
Hi,
I am 52 and have been battling breast cancer for the last 3+ years. Over this period I have had a lumpectomy and lymph gland removal, two lots of radiotherapy (second lot in the neck and shoulder) and currently undergoing my second lot of chemo. I am due to have a mastectomy in a couple of weeks time followed by more chemo. I have done a lot of reading on the subject of breast cancer over my treatment periods and much of it very conflicting or confusing.
I would like to know if anyone has read Professor Jane Plant's book - Your Life in Your Hands and taken it on board and what results they may have had. She wrote the book in 2000, six years after beating the disease. It is based on eliminating with all dairy foods and red meat (cow and beef) in your diet and consuming soy products and vegetarian type food.
I have been on it for three months now but it has been a huge change with the kiwi diet being based on these products. Thanks for any info you may have.
Cheers Linda
Hi Linda, Im wondering how you are doing and if your mastectomy has taken place by now. Youve certainly had lots to cope with. Soy products can be verified via other books other than Jane Plants. All about lowering unwanted estrogen molecules that maybe acting on your breast cancer tissue. Must be organically grown though.Remember though that you may need red meat to provide red blood cells. Have you investigated Eat right for your Type based on blood group.
Editor (Sue)
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27-Mar-05
Bob
Hamilton N.Z.
Hi my name is Bob I am the husband of an amazing lady called April. April was diagnosed with breast cancer 18 months ago at the age of 38. April had a mastectomy and a reconstruction as well as all the Chemo that goes with it.Since all this happened April has grabbed life by the Balls, She is a member of a newly formed Breast cancer survivors dragon boat team in Hamilton called The Waikato Treasure Chests, they recently won a silver medal in the Auckland Nationals Regatta, She has now completed 2 Special K triathlons and supports other women who are going through their treatment right now.
I once asked April if she blamed god for her cancer, the answer I got blew me away, she replied "no not at all, I got cancer because he knows im strong enough to deal with".
I dont doubt that for a second, April is a fighter and will continue to beat it and is an inspiration to every one who meets her.
Basically what i'm saying is, there is life after cancer you have just got to grab it. I see proof of it every time I watch 20 amazing women aged between 38 and 71 climb into a dragon boat twice a week determined to be the best, but to me they are all winners anyway.
Thankyou BOB WE NEED MEN LIKE U IN OUR LIVES(editor)
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15-Mar-05
Anna
Auckland
Tracey in Marlborough:I'm much the same age as you, and was diagnosed with DCIS, same as you, three years ago. I had a mastectomy and immediate reconstruction. I felt cheated, and all the usual 'why me's?' But most of all I felt angry. You will be OK, and you will see your kids grow up. You have to think that way because any other way is pointless. It's such a cliche, but the biggest thing I learnt out of the whole episode was that life really is too short. So now I grab it with both hands, and you must do that too. It's what keeps you going. It's having things like DCIS that makes you strong. People who go through life with nothing wrong don't really experience life. I look down at the scars on my body every day and although they sometimes still have the power to depress me, I have labelled them 'battle scars'. It sort of helps! So - chin up girl! There's loads of us out there.
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14-Mar-05
MAUREEN
WHANGAREI
Hi Tracey, Malborough - I'm 52 years old and discovered a lump in my breast which was removed in November 2003. I've since had chemo and radiation.
I know that its not politically correct or acceptable to speak about God and people don't want to hear about Him in difficult circumstances, even blaming Him for our sicknesses. But I've been prompted to let you know that Jesus loves you. He has already paid the price for your sickness/disease on the cross. So take heart and put your complete trust in Him and He will carry you through whatever you are going through. God wants you well and to be there for your children.
Have a look at these scriptures: Ps 41:10; Jer 30:17; Ps 103:1 - 5; Phil 4:13.
God Bless.
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06-Feb-05
Tracey
Marlborough
Hi There...
Well, where do I start. Why am I writing? I think I need some encouragement. I have just recently turned 38 and to my horror last year at the ripe old age of 37 I find out I have breast cancer...Ductal Carcinoma, is what mine is. I had a lumpectamy and 12 lymph nodes taked out and one had a 3mm deposit, with no extra nodal spread seen!!! I have finally just finished 4 rounds of Chemotherapy, which was no easy task. And am about to embark on 5wks of radiation...away from my family. I am trying to stay positive, but as it happens chemo, has a great way of pulling me down and today I am not positive. I would love to hear from other women with similar diagnosis...I need encouragement. I need someone to tell me I'll be ok and that I am going to live to see my kids grow up. I'm sure I'll snap out of this melancoly mood soon, but I just need to hear from someone.
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29-Dec-04
Mary
Manurewa
Hi everyone, Like thousands out there my eldest sister was diognosed with breast cancer. Instanty as the second elest sister, for the first time in my life i needed to pause with words not entering out from my mouth. Tears were flowing from her eyes, i must say for me i didnt cry but instead said "ok lets get fighting" I know this might sound horrible but i took the message as no time to waste. Previous years before this, i cared for my father inlaw who passed away with lung cancer right to his final day. And i thought dammed is this going to take another. To carry on, the battle of this disease just began from that day on. Her strength with-in, her courage with-in and most of all her will to live gave her the power to continue her journey to over-comming every hurdle. I must say not every day was a good day, and not every day was a bad day either. Together with her most presious darling boy and her dearest loving husband and family she gets stronger every day.. Every day we are blessed to have her here, i am one sister who is so proud of her MY SISTER (LULU).. Today she is still continuing her battle to fight this. having a well supportive and loving family, that she knows brings comfort to the days where she needs it most. To the familys out there, DONT GIVE IN, PUT THOSE GLOVES ON LETS ALL TAKE SHARE IN THE FIGHT TO SAVING THE MOST PRESIOUS PEOPLE IN OUR LIVES....OUR FATHER,HUSBAND,SISTER,MUM,NEICE SO ON.....KIA KAHA...BE STRONG...
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17-Nov-04
Nelson Verge
Guelph, Ontario
Hi, just visited your website and thought i'd also say Hi.
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20-Aug-04
Dave Andrews
Levin
I have just set up a new Internet search engine that only lists NZ based community web sites, the search engine can be found at www.linknz.co.nz
I have just indexed your web site to make your help and support available to everyone who may need it and that includes everyone in the world.
If you know of any further web sites that are of a community nature then please tell them to contact me and I will include there site in my index.
Many regards
Dave Andrews
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18-Aug-04
Meg Hills
Whakatane
Over the past 12yrs we have established several Support Groups and an extensive range of one-on-one support throughout the Eastern Bay of Plenty.
Would you be so kind as to include our Support Network in your list of contacts.
EBoP Breast Cancer Support Network
c/- P. O. Box 241
Whakatane
Many thanks
Meg
pp Core Group
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30-May-04
Louise
Wellington
Im 14 years old and have quite small breasts. Ive noticed i have freckly looking brown spots on my left breast and around the nipple. Is this normal or should i see my doctor? Id really appreciate your advice, Thanks
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24-Feb-04
Lisa
Auckland
I'm 36 and the mother of one pre-school age son. Last week I was diagnosed with an infiltrating ductal carcinoma in my right breast. I am scheduled to have a mastectomy, with removal of the lymph nodes, next week. At this stage I have opted to have a TRAM flap reconstruction at the same time but over the last few days I am not sure if I should leave the reconstruction for now and focus my energy into beating the cancer. I would love to hear from people who have been in a similar situation.
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16-Feb-04
karlene
wellington
my mother was diagonsed with breast cancer in 2001, they had to remove one of her breasts. after a few more months with her treatment she went back to work and living her normal everyday life. about 6 mths after she went back to work she started to get back pain this has gone on for quiet some time just last week we found out that she had the cancer back and she has threee tumors and is in her bones, its been one of the worst days of my life. i would like to hear from others that can try and make me feel hopeful again, at the moment im just to scared.
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27-Dec-03
Cindy
Auckland
I received the news on the 24th December that the lumpectomy I had 2 weeks ago had shown I have cancer in the breast and mastectomy is the only option. They're also going to remove all the lymph nodes and I'm going to have a breast reconstruction at the same time. I'm a little scared, am alone in NZ with my kids aged 8 and 12, no husband, family in South Africa. Would love to hear from others who've got through this alone.
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20-Dec-03
Jean Bentley
Kapiti
I have ductal carcinoma in situ [DCIS]. The pathology report on the lumpectomy I had shows the it is more widespread than previously thought. I now need a mastectomy. This seems so radical for what is a pre-cancerous condition. Any information about DCIS or stories from other women who have had this would be appreciated. Please email.
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13-Dec-03
Deidre
San Diego
We are visiting our inlaws in Kerikeri this Christmas and was wondering if there is anywhere nearby that rents hospital grade breast pumps? I am nursing my 2 month old son, but don't want to lug my pump from SD to NZ (trust me we already have too much luggage). I'd love to let my mother-in-law feed her grandson that she (unfortunately) doesn't get to see very often. Glad to know that breastfeeding improves the health of my baby, as well as reducing my risk of breast cancer. Good luck to all.
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17-Oct-03
busani ndlovu
nz
Pray that God may bless everyone behind breast cancer campaign and may God heal the broken hearts for those who lost their loved one because the diseases. I am a woman too.
God Bless NewZeand and bless the nation.
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29-Aug-03
Vicki
Wellington
Kia ora tätou
It's DAFFODIL DAY 2003
The Breast Cancer website informs me of genetic breast cancer. I was naively not aware of genetic breast cancer and I am wondering whether I am at risk.
I am a fairly healthy 40 year old, mäori with 2 kids [girl 18, boy 14]
Mum had breast cancer at 42 and had a mastectomy over 20 years ago. SHE’S STILL ALIVE TODAY at 63. So I've never let cancer be an issue with my whanau until....Dad died last year of cancer last. My grandmothers both died of cancer many years ago. Aged 50 and 72.
My concern is especially for my daughter and future generations.
I'm a very positive woman but now that I realise there's a patterned resemblance, should I be concerned at all?
Excellent Question Vicki. If your grandmothers died of Breast cancer then there may be a possibilty of a breast cancer gene within the family. A blood test to check the DNA from your mother would need to be done by the Genetics Service. This requires her permission. Family History does not conclude that you will get BC, only an increased risk. Extra surveilance from mammography will be required if a genetic risk is established for yourself and other family members.
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11-Jan-03
Lynda
Wellington
My mother was diagnosed with breast cancer after her first ever mammogram (aged 62) in 2000. She had a lumpectomy. She's had nothing but discomfort since, with a swollen, aching arm for weeks after the op. The breast itself developed a hard area just before Christmas last year and she had another needle biopsy done; thankfully no cancer was found but they did find a blood clot. It's just not fair.
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09-Nov-02
cheryl
invercargill
My mum was dianogised with breast cancer about 31/2 yrs ago and had it removed. They took out 29 lymph nodes,now she is very sick with no defense system against bugs and such, she also has a problem with fluid build up, and is currently taking fluid tablets which is not helping at all,is there someone out there who can offer some advice as to what we can try next. Please email me at the above addy.
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12-Sep-02
Trine Hansen
Denmark
I just lost my very beloved aunt to breastcancer - at least it started out that way but she ended up with cancer basically everywhere possible - she had been sick for 1,5 years and died on Sep.2 2002. Only 55 years old.
I have a very hard time comming to terms with her illness and her dying - I still havent faced myself with the fact that she is gone. I have weekly talks with my doctor and will go and talk with the cancersociety in DK. they only "operate" once a week here.
I would truly appreciate if anyone could help me cope with my loss. Advice , support ....anything.
I am moving back to NZ to finish my midwifery degree and that is why I put my message here in NZ. Regards Trine
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29-Aug-02
Lisa
Auckland
Hello, i was very pleased to find this site. I am one week out from finishing all my treatment. I would
really like to add my story but i'm not sure how?
A young woman's perspective...
If someone could get back to me i would appreciate it.
Have a great day.
We look forward to having your story on board Lisa
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06-Aug-02
Sue
NZ
Did you know that 1-7th August is Breast Feeding awareness week. In advertising only one image in a hundred compared with bottlefeeding will be of abreast feeding a baby. and studies show that Breast Feeding lessens the risk of breast cancer for the mother.
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